Today, I'm just kicking back realizing how blessed I am. I have so many cool things going for me. First of course, there are my incredible good looks. Really helps with the ladies. Who can resist cuddling with a chick magnet like me? Seriously, I feel that God has given me so many things to be thankful for. Sure, I have Cornelia de Lange Syndrome, and my life my be different than most, but I think that is one of my blessings. God has brought so many wonderful people into my life. I see God everyday in the way that my mom looks at me and takes care of me. I see God in my dad who worries about me and tends to hog all the snuggle time. I see God in my big brother Reece who always has to check on me and make sure that I'm ok. I see God in all my aunties who fight over who is the "favorite aunite". I see God in my church family, my grandparents, small group, and all the friends who showed up at my Bowl for Mason fundraiser. So what if I eat from a tube in my tummy? So what if I wear oxygen? So what if I"m small? I know that God exists because of all the love I feel around me every single day. So because of all this, I feel that I'm the one with all the blessings!
Thursday, September 11, 2008
Sunday, September 7, 2008
I am wiped out!
Oh, I am so tired. I've been sleeping all day. I went to this really cool event last night called Bowl for Mason. Can you believe it was for me? There were like 300 people there to see me! I got lots of hugs and kisses. I must say, I looked really awesome in my custom Bowl For Mason onesie! I even had my hair all combed and smelling good. The chicks really dig me! My Nana came in from New Jersey to come to the fundraiser, so I got even more snuggle time in. My mom and dad were really nervous about the event, but once they got there, they were so happy to see all of our family and friends. Even my pediatrician, Dr. Stroman came to bowl. How awesome is that? My big brother Reece was sporting his new Sponge Bob bowling ball. Someday, I'm going to get one too. I want to be just like my brother...he is one cool dude. So now everyone who came to the event knows all about Cornelia de Lange syndrome and what us kids are like. We are just kids who need some extra care and attention. Believe me...I love the extra attention!!!
Tuesday, September 2, 2008
What Not To Wear
So, I sent an email to the big wigs over at "What Not To Wear" so that I can look real spiffy for my big debut on Saturday at the Bowl-a-Thon. To be honest, I'm getting a bit tired of wearing duckies, bunnies, and footie jammies. Bring on the leather jacket and pleather pants! And this Johnson & Johnson shampoo is not cutting it at all! I am in need of some serious hair relaxin'. I just can't seem to manage all these curls. There is just so much to do before the big day, I just don't know where to start. I mean...do I take an early nap or a late nap. Should I eat before I go, or when I get there? Then I have to save room for the bake sale! Yum. I can't wait to meet everyone that is coming. I can't wait to see everyone bowling! I'm going to try and get my first strike so I can become a pro like my moms friend Diandra. Don't worry ladies, I'll have enough smooches to go around. Hopefully people will be smoking outside so I can stay awhile! Being on oxygen is hard enough without having to worry about being around lit cigarettes and smoke! Plus the smell will ruin my new duds! I better go now...I'm gonna con my mom into working on some new hairdo's for me.
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